Truveta Unveils Largest Mother-Child EHR Dataset for Pregnancy and Pediatric Research

What You Should Know: 

– Truveta, a data company dedicated to “Saving Lives with Data,” announced today the launch of the most comprehensive mother-child electronic health record (EHR) dataset ever assembled. 

– Truveta’s dataset surpasses traditional claims-based datasets, which often lack clinical details and have reporting delays. By offering comprehensive, longitudinal EHR data, Truveta empowers researchers to conduct more rigorous and impactful studies, ultimately improving the lives of mothers and children.

Revolutionizing Research on Mothers and Children

Truveta’s dataset offers researchers a unique opportunity to study the complexities of maternal and pediatric health. Key areas of investigation include:

Understanding the Link Between Maternal and Neonatal Health: Researchers can explore how maternal health impacts birth outcomes, long-term child development (including neurodevelopment), and childhood conditions up to age 5.Post-Market Drug Safety Monitoring: Truveta’s data can be used to evaluate the safety of medications and vaccines taken by mothers during pregnancy. This allows researchers to identify potential risks associated with specific medications and guide future clinical decisions.Studying Category C Medications: Category C medications have potential risks for fetuses, but limited research exists on their effects in humans. Truveta’s data can help determine the safety and efficacy of these medications for pregnant women.Investigating Pediatric Conditions: Researchers can analyze connections between maternal factors (demographics, health history, pregnancy outcomes) and the development of childhood conditions like asthma and eczema.

Unparalleled Data Depth and Security

Truveta’s mother-child dataset offers several key advantages:

Comprehensiveness and Timeliness: Truveta leverages data from over 30 healthcare systems, providing a complete picture of patient journeys. This includes clinician notes, medical images, claims data, social determinants of health (SDOH) indicators, and mortality data – all updated daily.Longitudinal Patient Data: With access to over five years of longitudinal data on over 1 million mothers and their children, Truveta offers researchers a rich resource for in-depth analysis.Accuracy and Completeness: Truveta’s data accurately links mothers with their children, preserving crucial details like demographics, medical history, and pregnancy outcomes. Additionally, comprehensive child data is available, including delivery details, diagnoses, procedures, and immunizations up to age 5.Unmatched Privacy and Security: Truveta prioritizes data privacy and security. Their de-identification process adheres to the strictest HIPAA regulations, and they employ robust security protocols to protect patient information.

 “Perinatal women and their children have long been excluded from clinical trials and other retrospective data sources, and we can’t understand the full effects of medications, vaccines, and diseases on their connected health outcomes,” said Terry Myerson, CEO and co-founder of Truveta. “Truveta now offers the largest mother-child EHR dataset, empowering researchers to advance care for all mothers and children with complete, timely, and representative data.”